National Office Staff
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John Risner |
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Medical & Research Programs |
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Annette Bakker, Ph.D. |
Salvatore La Rosa, PhD |
Pamela Knight |
Daniel Aiese |
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Development & Volunteer Relations |
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John Heropoulos |
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![]() Traceann Adams Program Director NF Walk ext. 6691 |
![]() Jill Beck Program Director Racing4Research 480-206-2479 (CA) |
Sarah Coulam Program Director NF Endurance ext. 6892 |
Chad Leathers |
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Patrice Pancza
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![]() Garrett Gleeson |
Carolyn Castellano |
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Kelly Mills |
Julie Pantoliano |
Alison Désir |
Marissa Moscatello |
![]() Kristine Poirier |
Chrissie Connors |
![]() Jessica Beckerman |
Sarah Morley |
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Suzanne Cannon |
Emily Phillips |
Lauren Fritz |
![]() Alissa Marks NF Endurance Manager, Marketing 917-621-5023 (OH) |
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Public Education & Patient Advocacy |
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Simon Vukelj |
Mary Vetting |
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Finance & Database Management |
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Judi Swartout, CPA |
Sarah Anderson |
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Eve Espinueva |
Monique Boucher |
![]() Mohamed Amin |
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![]() Rosa Amelia Perez |
![]() Danielle Meyer |
Sarah Rosenberg |
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New York Office
95 Pine Street, 16th Floor
New York, NY 10005
Phone: 212-344-6633
Fax: 212-747-0004
California Office
11601 Wilshire Blvd, Suite 500
Los Angeles, CA 90025
Phone: 310-216-9570
New England Regional Office (MA, RI, NH, ME, VT, Northern CT)
268 Summer Street, LL
Boston, MA 02210
Phone: 617-456-4706
Fax: 617-292-0019
The Foundation has 37 chapters throughout the United States:
Alabama, Alaska, Arkansas, California, Colorado, Connecticut, Florida, Georgia, Idaho, Illinois, Iowa, Kansas, Louisiana, Maine, Massachusetts, Michigan, Mid-Atlantic Region, Missouri, New Hampshire, Nevada, New York, New Jersey, Nebraska, North Carolina, Ohio, Oklahoma, Oregon, Pennsylvania, Rhode Island, South Carolina, Tennessee, Utah, Vermont, Washington, Wisconsin, Wyoming.
The National Neurofibromatosis Foundation was founded in 1978 by Allan E. Rubenstein, M.D., Lynne Courtemanche Shapirio R.N., and Joel Hirschtritt, Esq. In January 2005, the Foundation changed its name to the Children's Tumor Foundation.



















