Postcard size image of SAVE THE DATE,  7th Annual NF Forum, Scottsdale, AZ, April 17-19 2015

April 17-19, 2015: Scottsdale, AZ

The NF Forum is a weekend-long patient and family support meeting open to all people living with NF and their families. NF Forum attendees learn about the latest medical advancements in neurofibromatosis, get practical advice on NF-related issues, and learn about resources provided by the Children's Tumor Foundation.

The NF Forum also offers many opportunities for individuals and families to connect through social groups, activities for children, or informal gatherings over meals. It is anticipated thatmore than 200 people locally and nationally will attend this year's Forum.

Specific Aims:

  • Unite patients and families with the best NF physicians in the world in order to hear the message of hope that effective treatments for neurofibromatosis will eventually be found.
  • Provide presentations by prominent NF physicians to discuss the latest diagnostics, clinical trials, and management options, while giving patients the opportunity to discuss questions or concerns.
  • Provide two tracks of small group sessions specific to the different forms of NF, one for NF1 and one for NF2 and schwannomatosis, so that all participants may share experiences and get practical advice from top physicians and counselors on issues that are of particular interest to them.

The Children’s Tumor Foundation, mindful of the high cost of transportation and family expenses, has underwritten a significant portion of the registration in order to keep the registration costs as low as possible.

Adult (Age 21+)$99 (USD)
Youth (Ages 17-20) $75 (USD)
Child (Ages 0-16)$50 for first child ($20 for each sibling)
Sat. Dinner Guest for non-registered attendees    $100 (USD)
On-Site Registration: April 17-18, 2015$150 (USD)

Registration opens January 2015.

If you have any questions, concerns or need further assistance please email Traceann Rose at


Contact Us

Children's Tumor Foundation
120 Wall Street, 16th Floor
New York, NY 10005-3904

Phone: 212-344-6633