The NF Forum is a weekend-long patient and family support meeting open to all people living with NF and their families. NF Forum attendees learn about the latest medical advancements in neurofibromatosis, get practical advice on NF-related issues, and learn about resources provided by the Children's Tumor Foundation.
The NF Forum also offers many opportunities for individuals and families to connect, whether through the "NF Mom's Rock” and “NF Dad's Rock" social groups, the activities for children, or informal gatherings over meals. It is anticipated that over 180 people locally and nationally will attend this year's Forum.
- Unite patients and families with the best NF physicians in the world in order to hear the message of hope that effective treatments for neurofibromatosis will eventually be found.
- Provide presentations by prominent NF physicians to discuss the latest diagnostics, clinical trials, and management options, while giving patients the opportunity to discuss questions or concerns.
- Provide two tracks of small group sessions specific to the different forms of NF, one for NF1 and one for NF2 and schwannomatosis, so that all participants may share experiences and get practical advice from top physicians and counselors on issues that are of particular interest to them.
If you have any questions, concerns or need further assistance please email Traceann Adams at email@example.com.