Since the identification of the NF1 and NF2 genes in the early 1990's, NF research has made major strides. Today, we have a good understanding of the underlying biology of NF, and have identified some of the major drug targets for the disorder. We have NF cell and animal models, vital for the preclinical testing of candidate drugs. And we have established an NF Clinic Network that now includes 44 affiliates and is helping to standardize care for those living with NF.
The Children's Tumor Foundation has awarded over $30M in research grants since 1978, supporting innovative new ideas & focusing on bringing early-career scientist into NF research. Our investment has paid off by establishing a community of NF researchers who have successfully secured over $200M government funding in the past 10 years alone.