Ken Linkous attended his first NF Forum in Washington,D.C., last year. As we gear up for this year’s gathering in Scottsdale, AZ, we asked Ken to look back on his experience and share his thoughts.
The smiles. The warmth. The loving families. The NF Heroes! The hope-filled eyes of everyone in attendance! This is what I remember from my first-ever NF Forum in Washington D.C. in 2014. I was unsure what to expect when I arrived. I came to learn about NF research and the strides made to find a cure. What I came away with was a sense of family – of a team of volunteers, of caring individuals, of medical and research professionals and, most importantly, of parents, brothers, sisters, aunts, uncles, grandparents, and friends – who are united to find a cure to end NF!
Click to read the rest of Ken's essay.