Celebrating love at last year's Nashville NF Walk

on Wednesday, 10 February 2016. Posted in Blog

Ken and Erica 1Love is in the air this Valentine’s Day and NF Heroes, Ken Janik and Erica Givens, are breathing it all in. Numerous bystanders were moved by the sight of Ken getting down on one knee and asking Erica to marry him! (She said yes, of course!)

Two of the top fundraisers at the NF Walk in Nashville in 2015, Ken, originally from Cheektowaga, NY, and Erica, from Nashville, TN, both have NF2. Several years ago, Ken reached out to Erica in a Facebook support group, then, after several months of blossoming communication, met at the 2013 NF Forum in Nashville.

"We are very happy," says Erica. "Our relationship formed partially because of the NF Forum and Nashville Walk. So thank you very much to CTF for helping bring us together!"

Runners at the Carmel Valley 5K support NF research

on Wednesday, 10 February 2016. Posted in Blog

Carmel Valley 5K Rob and Ellie Brainin at Finish Line smOn January 24, 2016, nearly 2,000 runners and walkers, adults and kids, all took their mark at the 4th Annual Kaiser Permanente Carmel Valley 5K and Fun Run to raise money for the local schools and select nonprofit organizations, include the Children’s Tumor Foundation.

CTF National Board Member Rob Brainin crossed the finish line with his children Charles and Ellie, who at 6 years old lives with NF2, and took a moment to tell ABC News reporter Melissa Mecija all about the day.

Resources to Shine a Light on NF in 2016

on Monday, 01 February 2016. Posted in Blog

Shine a Light Social GraphicShine a Light on NF is a grassroots initiative that brings NF awareness into the community by lighting up buildings, bridges and monuments in blue and green.

In 2015, you went into your community and secured 40 landmarks across the country and around the world! Places like Niagara Falls, the Seattle Great Wheel and the Zakim Bridge all glowed blue and green on May 17th!

For NF Awareness Month 2016, we've created tools to make outreach even easier. Download the flyer and the graphic, and shine a light on NF in your community!

2016 NF Conference abstract submission deadline

on Monday, 25 January 2016. Posted in Foundation News & Events, Blog

NF Conference 2016 Save the Date Graphic2016 NF Conference abstract submission deadline March 28, 2016
Registration to open soon

2016 NF2 and Schwannomatosis State of the Art Conferences Registration Open

on Tuesday, 05 January 2016. Posted in Blog

nyu symp logo 3The Children's Tumor Foundation is pleased to be a co-sponsor for the upcoming 2016 NF2 and Schwannomatosis State-of-the-Art Conference to be held in NYC from March 16 - 18th. Click here to register and review the meeting agendas.

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