NF2 Exhibit Opens at the Queens Museum

on Wednesday, 19 November 2014. Posted in Foundation News & Events, Blog

Kristina and RyanKristina Diaz was diagnosed with neurofibromatosis type 2 (NF2) when she was eight years old and by the time she was 17, had lost her hearing. Channeling her thoughts and emotions into art, Kristina found other ways of expressing herself, including photography and writing, and earned a master’s degree in Creative Arts Therapy.

On November 15th, Kristina’s first art exhibition opened at the Queens Museum in New York City. Unwavering Truth: Archive of Our Own presents an honest look at people living with neurofibromatosis type 2.


Plexiform Neurofibroma Discovery in Lab Partially Funded by the Children's Tumor Foundation

on Friday, 14 November 2014. Posted in Foundation News & Events, Blog

LuLeAndZhiguoChenResearchers at the University of Texas Southwestern, led by Dr. Lu Le and Dr. Zhiguo Chen, have discovered that plexiform neurofibromas originate from Schwann cell precursors in embryonic nerve roots, a finding that could lead to new therapies for preventing the growth of these tumors.

New York Gala Raises Over $925,000

on Tuesday, 04 November 2014. Posted in Foundation News & Events, Blog

This year's event highlighted the unique contributions of the competitive racing community for utilizing professional auto racing as a vehicle to amplify awareness and raise funds for NF research.

Autos - New York Gala
(Photo: @marisaerinphotography)

Children's Tumor Foundation Announces New Chair of the Board of Directors

on Tuesday, 28 October 2014. Posted in Foundation News & Events, Blog

Distinguished New York City law firm partner accepts leadership role
with foundation committed to ending neurofibromatosis

Linda MartinNEW YORK, NY – The Children’s Tumor Foundation (CTF), an organization dedicated to finding effective treatments for the millions of people worldwide living with neurofibromatosis (NF), is pleased to announce Linda Halliday Martin as the new Chairperson of the Board of Directors. Martin, a Partner at Simpson Thacher & Bartlett, fills the Chair seat vacated by Stuart Match Suna, co-owner and President of Silvercup Studios.

Children's Tumor Foundation Hosts 2014 Gala “The Benefit New York”

on Tuesday, 28 October 2014. Posted in Foundation News & Events, Blog

Honorees include Park Place Motorsports, Vess Energy, and Compass360 Racing,
Jaishri Blakely, MD, and Jeffrey Owen Hanson

Sports Broadcaster and former IndyCar driver Brian Till
serves as Master of Ceremonies

Benefit-New-York-logoNEW YORK – The Children's Tumor Foundation (CTF) is pleased to announce that its annual event, The Benefit New York, will be held on October 30, 2014, at The Plaza hotel in New York City. Funds raised will support research into neurofibromatosis (NF), a genetic disorder that can cause tumors to grow on nerves throughout the body and affects one in 3,000 births.

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