Blog

Bloggers raise NF Awareness with posts about friends, family and themselves

on Thursday, 28 May 2015. Posted in Blog

Collective Bias, a community of bloggers, reached out to their writers to tell them about May NF Awareness Month. Keep reading to see how everyone connected with the campaign through their own personal experiences, including, as it turns out, two families with direct connections to NF, a woman who has a friend living with NF and a woman whose son goes to school with an NF Hero. One blogger even found a way to connect through her own experience as a parent who lost a child. 

Embracing the true spirit of the I Know a Fighter campaign, these writers draw attention to the inspirational and remarkable stories of those living with NF, who are fighters in every sense of the word, and those who support them in their fight.

I Know A Fighter Spotify Playlist

on Thursday, 14 May 2015. Posted in Blog

In concert with our "I KNOW A FIGHTER" campaign, CTF curated a playlist of energizing songs to inspire
the fighter in all of us! 

I Know A Fighter Square 2

Landmarks Around the World Shine a Light on NF

on Tuesday, 26 May 2015. Posted in Foundation News & Events, Blog

Bank of America Plaza Dallas 4In honor of NF Awareness Month – the entire month of May – and World NF Awareness Day – May 17th – volunteers across the globe joined together to raise awareness in their community. Buildings, bridges, monuments and landmarks (plus a waterfall and a castle!) lit up blue and green, the official colors of neurofibromatosis (NF).

Shine a Light on NF is one part of the Children’s Tumor Foundation’s month-long awareness campaign that includes online and offline events designed to educate the community about this under-recognized genetic disorder.

Children’s Tumor Foundation Receives 4-Star Rating from Charity Navigator 6th Year in a Row

on Thursday, 21 May 2015. Posted in Foundation News & Events, Blog

4StarSquareThe Children's Tumor Foundation is excited to announce that it has once again been honored with a 4-star rating from Charity Navigator, America's largest and most-utilized independent evaluator of philanthropies.

This is the 6th year in a row that Charity Navigator has given the Foundation its coveted 4-star rating for sound fiscal management and commitment to accountability and transparency.

Receive an Amazon gift card when you participate in the NF Registry

on Thursday, 14 May 2015. Posted in Blog

During May, Children's Tumor Foundation (CTF) will give away 200 Amazon gift cards to thank those who help NF research by participating in the NF Registry. Both existing and new registrants may participate.

The Registry is a secure database that stores information about an individual's NF history and symptons. This information is completely confidential and is used only for research. It is open to people living with any form of NF, including NF1, NF2 and schwannomatosis. 

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